Understanding ADPKD helps support life-long management
Autosomal dominant polycystic kidney disease (ADPKD) is a rare disease that can lead to severe impairment of kidney function and kidney failure.1-3 There were approximately 140,000 diagnosed cases of ADPKD in the United States in 2017.4 It has been estimated that the annual costs associated with end-stage renal disease due to ADPKD are $1.8 billion.5 Identification of patients at risk for rapid progression may provide an opportunity for intervention.6-8
Frameworks in Health and Quality: Collaborating for Improved ADPKD Management is a series of educational resources for healthcare stakeholders — including providers and payers who can choose to share resources with patients and their caregivers — that aims to:
- Emphasize the importance of understanding ADPKD and its impact
- Enhance communication among all stakeholders
- Support the healthcare team with patient and caregiver educational materials
- Promote ADPKD topics such as management, risk factors for rapid progression, patient engagement, and shared decision making
Evidence demonstrates that earlier detection and management of ADPKD may provide an opportunity for intervention to treat early-onset complications.9,10 Our Frameworks in Health and Quality: Collaborating for Improved ADPKD Management program can complement your efforts by providing resources to key stakeholders who are in a position to help improve the care delivered to patients.
Payer Resources
Program materials include key issues for payers such as clinical and economic disease burden, identification of at-risk patients, and disease management.
Provider Resources
Program materials include key issues for healthcare providers such as diagnosis, monitoring disease progression, disease management, and potential strategies to collaborate with patients and caregivers to help manage ADPKD.
Patient/Caregiver Resources
Program materials for patients and caregivers focus on education, management, engagement, and communication associated with ADPKD.